Has anyone seen it??
Last night The Man bought me a new Android phone. Now I don't do technology all that well. What I have instead are 2 appointment calendars, some headphones on a cord, and a MP3 player that I only know how to turn on, select my audio book of choice, and then turn it off again. I NEVER touch the remote on the tv! And when a technician comes around and tries to explain something to me I always say 'Talk to The Man'. That or 'Back away from my noggin if you know what's good for you! It may go off at any moment!!'
I only mention the phone because he was inputting my appointments for me. When I happened to see yesterdays date I was astounded! Where did it go? What happened to January? Glancing through my calendars I see that my January went with all the doctor appointments I had. If you are like me and can only tell the day of the week (not necessarily the month) by your next appointment - then there is something sadly wrong.
I'm beginning to wonder how many hours my backside has warmed those uncomfortable seats you get to sit on in a waiting room of any kind. Where do they find those chairs to begin with? Now I have to buy different pants to fit the shape my buttocks have taken on.
Let's get back to that phone again. I'm telling you right now that I'm probably never going to learn how to use most of it. And if anyone catches me texting - just shoot me! Ack - digression!
What I keep meaning to say is that nearly all of January has been filled with doctor appointments. Don't you wish you had my life?
Uh - No - you don't. Believe me.
At present we are once again waiting for an appointment with a specialist. As we all know, here in Canada it can take an awful long time to get in to see one. Where they used to say up to a nine month wait, now they are saying a year's wait. Most of us have learned to be patient or forget about it altogether. That way when the call finally comes that you DO have an appointment - then it's time to bring out the cake (and the ice cream of course)!
But this time around is supposedly very different! This time they believe they know what has been causing all the pain and everything else. Three years of plodding along, smiling and 'Keeping my chin up' have been hard, but I've done it. I believe I've paid my dues many a time and now I just want to get the results from the latest round of tests and deal with it all.
I'm looking for anyone who has any of the following:
Porphyria
Lupus
Fibermyalgia
Celiac Disease
If anyone has either one of these diseases I'd appreciate contact and an exchange of knowledge, or support, or just a pat on the head in passing.
As it stands at present, tests have shown that I have all four of these diseases. That in itself is a little unusual and some of the diseases have the same symptoms, so we await the last round of tests for more positive results.
It is not the end of the world certainly but my doctor has once more asked me if I have my Living Will completed. A gal couldn't be having more fun I tell you! And if they can get rid of the pain that has taken over my body for over 3 years, I'll be a happy camper.
So if I say I've forgotten - I truly have. My short term memory stinks. Reeks even! It could be a number of things (obviously) but it could just be a result of the pain medication. In fact, we have found out that some of the pain medication was a trigger and causing me more pain! Even food can be a pain trigger - Hello smoothies! Do you know - I've never had a smoothie until this forgettable month!
I could go on and on - (snore) but I'm going to call a halt to this post right here. Any info or whatever will be gratefully appreciated. I promise!
Now I have to go answer that phone - (I think).
